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Title: Experiences of Primary Caregivers of Children Diagnosed with Attention-Deficit / Hyperactivity Disorder
Authors: Joseph, Titus
Keywords: Centre for Human Ecology
Chetna Duggal
Issue Date: 2014
Publisher: TISS
Abstract: Caregivers of children with Attention-Deficit/ Hyperactivity Disorder (ADHD) experience significantly high amount of stress owing to the nature of the disorder and the demands it creates (Johnston & Mash, 2001). Existing literature in India is limited in documenting the caregiver’s perspectives and experience in caring for a child with ADHD. A qualitative exploratory study was developed to explore the experiences of caregivers of children diagnosed with ADHD .The caregivers experience of the impact of caregiving, social support experienced, means coping and meaning making were the primary objectives that were explored. To meet the objectives, nine mothers of children between the ages of 5 and 15 years, diagnosed with ADHD, were interviewed and their narratives were analyzed using thematic analysis. Findings revealed that the concerns caregivers reported regarding the child’s behaviour were mainly academic in nature. However, they were able to perceive the child as having numerous strengths as well. The various demands of caregiving had a strong emotional impact on the caregiver along with impact on their career choices and health. The support caregivers received was minimal be fore seeking help, however, a better understanding of the cause of th e disorder helped caregivers negotiate support from others mention who. In order to cope with the stress of caregiving, caregivers engaged in stress reducing activities such as reading meditation and yoga. They made meaning of their role as a caregiver of a child with ADHD by looking at their experiences through a spiritual and religious perspective .
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