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dc.contributor.authorMishra, Anjali-
dc.description.abstractObjective The objective is to study the differences in parental factors, socio-demographic characteristics and poor compliance to therapy among the parents/ care-givers of children with CP. It is to assess the relationship between parental factors (perceived social support, perceived parental stress and financial well- being) with poor compliance and predict poor compliance as an outcome of parental factor, (perceived social support, perceived parental stress and financial well- being) among the parents/ caregivers of children with Cerebral Palsy. Method The study was conducted in metropolitan city of India. Parents of children with Cerebral Palsy (N = 150) were interviewed or administered a structured questionnaire. Convenience sampling was done to collect data from a government health facility and two private health facilities. Standardized likert-response scales assessing perceived social support, parental stress, perceived stress and financial well- being, were used for the study. Poor compliance was assessed by developing a likert-response scale that included items on regularity in attending appointments, providing assistive devices, following the home programme, and the prescribed dietary modifications for the child. Basic demographic information was also collected. The questionnaire was translated into Hindi. After prior persimmon from the respective in charges of the facilities, and written consent of the participant, interviews were conducted. A few questionnaire were completed by the participants. Results The data was analyzed using SPSS. Descriptive analysis was done. There were Univariate analysis, t- tests, Pearson product moment correlations, and regression tests done using the study variables- perceived social support, perceives stress, financial well- being and poor compliance. Age of the child, income of the parent and duration of visit to the facility were the socio-demographic variables identified for the study. Other than age of the child , there were significant differences seen between the mean values of income, duration of visit to facility, perceived social support, perceives stress, financial well- being and poor compliance among the parent/caregivers of children with CP going to the government and private facilities. Pearson product moment correlations showed negative relationships between financial well-being, perceived social support. The relationship between perceived stress and poor compliance was also significantly negative. The regression model was significant in predicting variance in poor compliance by perceived social support and financial well- being of the parents/ caregivers of children with CP. Conclusion Parents who report feeling more stressed might face difficulties in being compliant with therapeutic recommendations for their children with CP. This becomes further evident by the study findings that show parents going to private facilities for therapy of their children with CP reporting better social support, financial well-being and lesser stress than the ones going to a government facility. Further private users are found to report better compliance to therapy than the government ones. Therefore, in order to improve compliance for therapy among children with cerebral palsy, psychological, economic and social factors need to be addressed further. The government facilities require more of this sensitization as the users of such facilities are found to be struggling with a poor socioeconomic and parental characteristics (lesser income, lack of social support, higher stress) that is negatively affecting the compliance to therapy of their children with CP. Thus, there needs to be emphasis (formally/ informally) on the study and intervention design that looks into the social determinants of compliance for the disorder and help improve the quality of life for the parent and the child with CP.en_US
dc.subjectSchool of Health Systems Studiesen_US
dc.subjectHemal Shroffen_US
dc.subjectCerebral Palsy Childrenen_US
dc.titleAn Investigation Of The Relationship Between Parental Factors And Poor Compliance To Therapy Among Parents/Caregivers Of Children With Cerebral Palsyen_US
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